Patient Research Experience Survey 2018

How do patients and participants who take part in research feel about their experience? And if it's a negative experience, how do we learn from that and change our practice? These are some of the aims of the Patient Research Experience Survey (PRES), a national NIHR initiative.

This year, after input from the PRES Working Group (with representatives from all partner Trusts across the West of England and Patient Representatives) we have changed the design from last year in a bid to make responding easier. We've also asked questions that relate to ethnicity as we believe that equity of access to research to all communities in the region may not be happening.

This year we have four versions for those who have taken part in a research study:

• the main survey, for everyone over the age of 18
• 4-7 years old (the woodland animals version)
• 8-13 years old (the comic book version) and
• 14-17 years (the 'social media' version).

This year, we have designed the main survey so that the front is detachable, with a message of thanks for taking part in research and the survey itself forms a prepaid gummed response envelope. There is also a QR code and a URL if participants wish to complete the survey online.

We have distributed all of the surveys that were printed (1300). Thank you to all of our colleagues across the region for all of your help so far. The report from the last PRES we completed, in 2017/2018 can be read here.